Categories: world

Mom's moment of joy turns into horror

(newser) –Priscilla Maldonado was robbed of a happy New Years Day moment – and things have hardly become easier. The 25-year-old Texas mother had just given birth to her son Ja & # 39; bari at the Methodist Hospital in San Antonio when the delivery room was silent and her newborn was rushed away. "I was worried," she tells the Washington Post . "I was confused." She soon saw her bandaged son attached to the wires and tubes in the ICU, where doctors said he was born without skin, hands, feet, back, arms, chest and neck. Diagnosis: aplasia cutis congenita, a condition that leaves babies without skin and sometimes underlying bone structure. Maldonado and her husband, Marvin Gray, were told to go home and let him go by. "I felt lost," she says. But Ja & # 39; bari was transferred last week to Texas Children's Hospital in Houston and gave a new diagnosis, epidermolysis bullosa a rare genetic disorder that makes the skin fragile and even damages erosions and blisters. Medicaid said at the outset that the insurance did not cover the hospital transfer but changed its decision after the media surveillance intensified, according to San Antonio Express News . While Ja is expected to live, an expert says he is facing "a very challenging life" that includes operations and "disfigurement". In fact, the three-month-old eyes are still closed and his fingers and toes remain melted. But Maldonados, who works at a fast food restaurant in San Antonio, says…


(newser)

Priscilla Maldonado was robbed of a happy New Years Day moment – and things have hardly become easier. The 25-year-old Texas mother had just given birth to her son Ja & # 39; bari at the Methodist Hospital in San Antonio when the delivery room was silent and her newborn was rushed away. “I was worried,” she tells the Washington Post . “I was confused.” She soon saw her bandaged son attached to the wires and tubes in the ICU, where doctors said he was born without skin, hands, feet, back, arms, chest and neck. Diagnosis: aplasia cutis congenita, a condition that leaves babies without skin and sometimes underlying bone structure. Maldonado and her husband, Marvin Gray, were told to go home and let him go by. “I felt lost,” she says.

But Ja & # 39; bari was transferred last week to Texas Children‘s Hospital in Houston and gave a new diagnosis, epidermolysis bullosa a rare genetic disorder that makes the skin fragile and even damages erosions and blisters. Medicaid said at the outset that the insurance did not cover the hospital transfer but changed its decision after the media surveillance intensified, according to San Antonio Express News . While Ja is expected to live, an expert says he is facing “a very challenging life” that includes operations and “disfigurement”. In fact, the three-month-old eyes are still closed and his fingers and toes remain melted. But Maldonados, who works at a fast food restaurant in San Antonio, says they bid every day and have a GoFundMe account of nearly $ 80,000 per People . They will fight for “bar” to the end, “Priscilla says. “Until he gives up.” (Read more new stories.)

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