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Families share devastating effect of rare polio-like disease acute slap myelitis

A rare but potentially paralyzed disease called Emergency Slap Myelitis or AFM, has parents on alert. Centers for Disease Control…

A rare but potentially paralyzed disease called Emergency Slap Myelitis or AFM, has parents on alert. Centers for Disease Control and Prevention say AFM has spread to 24 states with 72 confirmed cases, including 10 new.

Camdyn Carr, 4, is just a child affected by the disease. A photo of Camdyn taken August 30 shows that he had a sinus infection. But within 72 hours he was paralyzed.

“My son died on that Tuesday,” his father Chris said. “He coded.”

Fortunately, physician revived Camdyn. Now he is at the Kennedy Krieger Institute in Baltimore for intensive therapy. But acute weak myelitis has hardened his body and he has a tube to help him breathe, with only little movement in one hand and one foot.

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“I hope these children,” says Rebecca Martin, who manages the rehabilitation center. “They make slow progressive progress and they can really change their level of functioning with the right kind of therapy we provide.”

There is a road Christa Bottomley and her 6-year-old Sebastian knows well. Two years ago when the AFM cases rose, Sebastians became cold into the poliological disease and caused almost complete paralysis. But after 2000 hours of rehabilitation he can take care of himself, feed and stand. But learning to go again has been a slow, gravely process.

“Sometimes he says things like” mom, why can not I go like everyone else does without all this work? “And I said,” You know, God knows you were strong enough to handle this, “said Bottomley.

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Sebastian Bottomley has undergoing treatment after receiving AFM.

CBS News

In an interview with CBS This Morning employee John Dickerson, CDC director Dr Robert Redfield the agency still did not say what causes the poliological disease, but it “does not seem to be transferable from human to human . “

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