It's every mom's worst nightmare, because your child suffers more every day but there's nothing you can do for them.…
It’s every mom’s worst nightmare, because your child suffers more every day but there’s nothing you can do for them.
For eight years, it was Zola Benjamin’s reality.
When he was only three years old son Caden, was diagnosed with Prader-Willi syndrome, a genetic disorder where the patient’s appetite is never satisfied. Basically, their hunger is permanent no matter how much food they eat.
“There are days where I feel,” Okay, there may be some hope. Things can get better. “But then, the truth is never getting easier, Zola said to you last year.
” This is my reason for help. I want to help my son and make life easier for him. But I’m limited in what I can do for him. “
And doctors were also. At the age of 1
1, Cadden’s condition had evolved to the point where his body could not handle the load and he had difficulty breathing. He spent most of the days in an oxygen tank.
November 15 this year died at the Steve Biko Academic Hospital in Pretoria.
Zola is devastated.
“It felt like my life had stopped.” The distraught mother says the moment her son took her last breath. “19659002” My Heart has a big hole inside it. He was all my life and my reason to want to live. I can not continue without him. The pain is indescribable. No mother should ever have to bury her child. I never thought he would go so fast. “
Zola does not want to reveal his child’s weight at the time of his death. Last year, in just 10 years, the Caden tipped the waves with a staggering 90kg.
He was not an overweight baby but born too early and weighed only